Nurses, Stander & Lila updates

Our nurse update:

I’ve been meaning to update you all on THIS POST for a few months now, but life. That blog post went viral (locally)! It was shared almost 90 times on Facebook and eventually, it found way to our CURRENT Monday nurse! YAY! Lila is back in school on Mondays and when she’s sick, I have the extra help taking her to the doctors and caring for her at home. I want to say a BIG HUGE thank you to everyone that shared the post that eventually lead us to our nurse! Nurse C is an amazing fit for Lila and our family. We’re so fortunate to have her a part of Lila’s village.

Our stander update:

We got our hands on a stander back in September. It’s a hand-me-down (they were going to throw it in the trash) stander. She’s a few inches away from growing out of it, so our journey to finding a stander hasn’t ended yet. Sigh. Recently, I’ve been approached in public in regards to the stander situation (because of that blog post), so I’m happily aware that there are folks who are actively seeking a stander for our sweet Lila! THANK YOU!! If you have any leads to a FREE or a minimal costing stander, you can contact me HERE! Lila is almost 7 years old and 50 pounds-we’re hoping we can find a stander that will last her a big chunk of years. 

Our Lila update:

I know some of you LOVE little updates on sweet Lila. She’s had a very sick fall. Cold virus. After cold virus. After cold virus. It’s been non-stop. All her colds lead to a sinus/bronchitis infections. Which leads to antibiotics. Then leads to messy diapers and a UTI. Then another set of antibiotics to cure her UTI. Which leads to an overgrowth of bacteria in her GI track and it sends her to a THIRD SET of antibiotics. By the time I get her healthy again, she catches another cold. As her pharmacist says, it’s a revolving door. It doesn’t end until June. By the time March pops around-you can find me in my closet. In a fetal position. Weeping. On a happier note, Lila is enjoying her first grade experience. All her classmates adore her. Her school treats her like the princess that she is. We have two amazing nurses. A great PT, OT, Speech teams. Amazing specialist doctors down in Portland. We’re very fortunate. <3

 

Now, I can’t write-up a blog post without some personal pictures! 

Full moon=VERY HIGH TIDE and HUGE waves at the breakwater. No walk for us!

Breakwater-Rockland, Maine

Lobster Trap Tree- Rockland, Maine

Breakwater-Rockland, Maine

Lobster Trap Tree- Rockland, Maine

Jude’s miserable visit with Santa. He didn’t say one word. 

Lobster Trap Tree- Rockland, Maine

Our first snow of the season. GAHH!

Rockport, Maine

Rockport, Maine

Rockport, Maine

Rockport, Maine

 

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